Community Partners and Legacy Project

By: Russell Campbell & Louis Shackelford- HANC, Seattle, WA, USA

Legacy Project

The Legacy Project at the Office of HIV/AIDS Network Coordination (HANC) works to support and increase awareness of HIV clinical and behavioral research throughout the United States. Legacy’s primary goal is to promote diversity in HIV research by addressing factors that influence the participation of historically underrepresented communities. The Legacy Project achieves its core mission through strategic community engagement and partnerships, educational initiatives, and scientific investigation. 

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Additionally, Legacy works to cultivate and enhance collaboration among the National Institutes of Health (NIH) HIV/AIDS Clinical Trials Networks and associated research sites, academic and research institutions, governmental agencies, and community-based organizations. The Legacy Project is committed to capacity building for communities and populations most impacted by the HIV epidemic in the United States.

The Women’s HIV Research Collaborative

The Women’s HIV Research Collaborative (WHRC) is a cross-network advisory group of the Legacy Project comprised of women leaders from around the U.S This group provides guidance and leadership in the development, implementation, and dissemination of information about HIV research focused on and responsive to the needs of women and girls in the United States. The WHRC works to raise the visibility of 

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issues related to HIV in women in the US, and promote awareness of scientific research to women in disproportionately impacted communities. The WHRC focuses on advocating for HIV research with women living in the United States, but operates with a comprehensive awareness of the potential for American women to benefit from HIV research conducted internationally. To this end, the WHRC’s focus is domestic, but its interests are global and optimistic.

Community Partners

Community Partners (CP) is a cross-network body charged by Network Leadership and the Division of AIDS (DAIDS) with promoting effective representation of the many communities within which the National Institutes of Health (NIH) HIV/AIDS clinical trials networks conduct research.

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CP focuses on improving intra-and inter-network community input at all levels. CP’s work includes identifying and developing programs to enhance training and support requirements of local Community Advisory Boards, increasing the representation and participation of community members from resource-limited settings and vulnerable populations, and identifying and addressing challenges to participation in clinical trials.

*Russell Campbell is the Deputy Director of HANC, and Louis Shackelford is the Project Manager of the Legacy Project.